It's been a very long week

It's been a long, stressful and tiring week and we don't have a clear end in site.

Today was day 9 in the NICU.  We started out thinking that Nate's only concern was going to be his oxygen levels, but that quickly became only one of his problems.  About mid last week he developed a fever and none of the cultures have come back to tell us anything, be it a virus or bacterial.  He is back on IV medication.  We have ruled out meningitis, thank you Lord for watching over him in that way.  Next he started spitting up bile so they did X-Rays which of course showed nothing and they did an upper GI today and we are waiting on the doctor to call with the results of that test.  He is on no feeds until they can get the spitting up to stop.  I am just waiting on a very unhappy baby to surface because he can't eat.  Please keep our little buddy in your prayers, you can tell he doesn't feel good and that hurts mommy and daddy. 

Miss priss is such a character!  She will go in our closet and hide behind the door and yell come find me. If you say where's Juliet she will giggle.   Her curtains are also a great source of fun for her.  She will sit behind them but stick her feet out the bottom or she will pull them up over her head to make a hat, (goofball!!)  She has started trying knock knock jokes. It was knock knock, whose there, a cow, a cow who? A moo cow. Pretty good for 2.5 year old!  We had our first shath (shower bath combo), she told me that it was raining in her bath.  She tries to bathe herself, she can do part of her legs and her tummy and don't help me or I will scream NO.  Got in the car to go to school and she told Jon, Nate sits there.  We had thought he was going to get to come home so we had put his seat in the car last week.  Her newest sayings are Too bad and it's ok.  The it's OK gets old when every time I cough, sneeze, laugh or cry she asks, you OK mommy, but I live with it.  She's a sweet precious baby girl.  The highlight of our visit to see Nate was when Juliet looked at him and said there's his titty and pointed to it.  Jon and I about fell on the floor laughing.

Jon and I are hanging in there, this is a very rough time for us and we appreciate all the love and support we are getting.  If we haven't told you thank you personally, I'm sorry, we really do appreciate every kind word, thought and prayer.  We are learning so much about our limitations and how much we can handle.  We are also learning how to worry, but still be happy attentive parents for Juliet. 


Jessie sent me this today after her visit.  It is so hard to remember that we are not in control and we have to trust that Jesus is taking care of us all and that he has a plan for this little boy and for our family.  Thanks Jess, Love you.

Rejoice in the Lord always; again I will say, Rejoice (Thank you gracious Lord for our precious Nathaniel!). Let your reasonableness be known to everyone. The Lord is at hand; do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God (PRAY!). And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus. Finally, brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things. What you have learned and received and heard and seen in me—practice these things, and the God of peace will be with you. Philippians 4:4-9